Making the most of short and precious lives across the South West
Children’s Hospice South West (CHSW) provides the only hospice care in the South West for children with life-limiting conditions. This means that these children are not expected to survive into adulthood. Our three hospices – Little Bridge House in North Devon, Charlton Farm in North Somerset, and Little Harbour in Mid Cornwall – provide respite care and support for those children and their families who are having to cope with the most difficult of situations. We also provide a full range of palliative, emergency, and end of life care and bereavement support.
We provide a loving and caring place for every member of every family who stays with us; a sanctuary for mums and dads, brothers and sisters. A place where everyone can begin to forget their worries for a while, be a family again and find expert help and support in facing an uncertain future. And because we are there every hour of every day, we are able to provide a listening ear at any time, but most particularly, during the night when life can seem a little more difficult.
In December 2011, we added the final piece to our network of special care when we opened our third ‘home from home’ Little Harbour, in Porthpean near St Austell. This means that no family with a life-limited child living in the South West peninsula needs to travel more than ninety minutes to access our vital services. It also enables us to reach out and support even more families who need our help.
Our ‘hospice by the sea’ has everything a sick child and their family needs to make their stay as comfortable and enjoyable as possible. It is often described as top quality hotel standard accommodation with a homely feel and that is exactly what we are aiming for.
Curved walls and bright colours help distinguish the hospice from a clinical hospital, with each child receiving a warm and friendly welcome as their bedroom is personalised for their stay. Hoists and medical equipment is on hand, but not intrusive, enabling first-class care in a homely environment.
The ‘Lobster Pot’ soft play area, ‘Lighthouse’ multi-sensory room, and ‘Starfish’ spa room have all been designed with the needs of sick children in mind. From a safe place to play with brothers and sisters, to a space to relax or explore different sensory experiences, to a fun splash around with Mum and Dad or a hydrotherapy session to alleviate stiff joints and muscle spasms, the facilities are multifunctional and well-used.
Catering for all the family
For siblings the Messy Play or Games rooms are often favourite spots in the house, giving them the chance to express themselves and play with other siblings going through similar circumstances.
Cosy family lounges, a quiet conservatory, and beautiful grounds provide a haven for Mums and Dads; a place to relax and maybe curl up with a good book or magazine – simple pleasures they may not get the opportunity to enjoy at home.
As with our other hospices, Little Harbour has a room called ‘Starborn’ in which, after a child has died, they can be laid for up to seven days. This special room looks very much like a bedroom, but is kept at a regulated temperature. This allows families to be in an environment where they can say goodbye to their child properly, surrounded by loved ones, with the support from members of the care team who have looked after their much-loved child during their stays.
Although thankfully very few of us will ever have to cope with the loss of a child, there are far too many who will. You can help some of these families on their difficult journeys by supporting Children’s Hospice South West.
As a charity we are almost entirely funded by voluntary donations. Quite simply we couldn’t provide the wonderful service we do without the support of local individuals, groups, and businesses. To find out about the many different ways in which you can help visit www.chsw.org.uk
At Children’s Hospice South West we know that memories are among our most treasured possessions. Creating them for the families of life-limited children is a big part of what we do.
Our Moonlight Memory Walks take place in September and October. These special ladies only walks have been described by previous women as ‘inspiring and uplifting’. The events bring together women of all ages who take to the moonlit streets to walk in memory of someone they have loved and lost.
Join us as we remember and celebrate the people who have been important to us all. By taking part you’ll be helping to raise vital funds to support the families who use our hospices where they can create their precious memories that will last a lifetime.
This year's event
Falmouth - Saturday, 21st September
This year we are celebrating the 5th Anniversary of our Falmouth Moonlight Memory Walk! The 5 mile circular route will take ladies past some of the historic town’s greatest sights, including the town centre, Pendennis Point and the sea-front.
Saltash - Saturday, 5th October
Building on the success of our Falmouth event, we are taking our special walk to Saltash for the very first time! Starting in Longstone Park, the 4 mile circular route will take ladies down the high street, across the Tamar Bridge* and back, then down Ferry Bridge Road, along the riverside.
Join hundreds of ladies as we take to the moonlit streets of Falmouth and Saltash to celebrate our precious memories with every step.
To register, please click here www.chsw.org.uk/moonlight or call the fundraising team at Little Harbour on 01726 871800 to request an entry form or for further details.
Dragon backs Children’s Hospice South West business fundraiser
Renowned entrepreneur and Dragons’ Den investor Deborah Meaden has given her backing to Children’s Hospice South West’s new corporate fundraising initiative.
She is calling for South West businesses to make a real difference in their local community and put themselves to the test with The £50 Challenge.
Children’s Hospice South West’s homely hospices – Little Bridge House in North Devon, Charlton Farm in North Somerset, and Little Harbour in Cornwall – provide a loving and caring place for families with children who are not expected to reach adulthood. These families visit the charity’s special children’s hospices for respite stays and the opportunity to make the most of the precious time they have together.
Businesswoman Deborah, who lives in Somerset, is passionate about the cause and recognises how vital the work of Children’s Hospice South West is. She explains:
“These are our children and our families in our region – I can really see the importance of having a place to be with people who understand, who know how to be around you to make this awful thing as painless as it could possibly be.”
The specially trained staff at the hospices also provide care in emergencies, at the end of life, throughout bereavement and beyond. Their work has a lasting effect on the families they support.
As a charity Children’s Hospice South West could not provide this vital service without the kindness and generosity of local people, groups and companies. Deborah is encouraging local businesses to do their bit by taking on The £50 Challenge. She says:
“It is easy when times get hard to just worry about business on a day to day basis and look inward. Engaging with the community is so important for companies to look outward and do some real good – and you will feel great about the business too as a result.
“It’s a wonderful thing to be able to come together and get motivated to do something fun, and out of that fun comes good. It’s not just about handing money over, it’s about telling the story of Children’s Hospice South West and it is so important for people to know there is this amazing place.”
The £50 Challenge sees companies using their business skills and innovation to generate as much money as possible for Children’s Hospice South West. CHSW will provide you with a £50 start-up investment, it’s then over to you to put your business brain and money making acumen to the test by growing this amount as much as legally and ethically possible in just three months.
Does your business have what it takes to convert your £50 into big money for Children’s Hospice South West? Visit www.chsw.org.uk/the50challenge to find out more, motivate yourself with a special message from Deborah Meaden, and download your registration pack for The £50 Challenge
Other upcoming events
Saturday 24th August 10am - 4pm
Upton Cross – Cream Tea Party at the Dragonfly Tea Room, Netherton, Upton Cross, PL14 5BD, Selling cushions, bags, pottery, Cornish Willow and fabric. In support of Children’s Hospice South West
Saturday 24th August 3 p.m. & 7 p.m.
REDRUTH - Musicality 2013 'The Regal Years' at The Regal Theatre, Redruth supporting Children's Hospice South West, CLIC Sargent, Phoenix Stroke Appeal. Tickets: Adults £10, Under 18's £7.50, Box Seat £15, Family Ticket £25 [2 adults, 2 children]. For more information contact Claire-Louise on 07743 422499 or email email@example.com
Saturday 24th August 9 p.m.
HOLYWELL BAY, NEWQUAY - Fun Quiz Night in aid of Little Harbour, Children's Hospice South West at The Treguth Inn, Holywell Bay.
Saturday 24th & Sunday 25th August Commencing at 12 noon on the 24th with the Music Mart Live Event
PAR - Brit Bestival - Two Days of Live Music at The Britannia Inn, St Austell Road, Par. PL24 2SL. Children's Play Area, Bouncy castles, Raffle, BBQ 2 Outside Bars, 4 Star Glamping, Toilets, Camping (Weatherproof Marquee). FREE ADMISSION: Donations gratefully received for Children's Hospice South West
Sunday 25th August Commences at 10 a.m.
PORTLOE - Roseland Fun Pony Show & Gymkhana for children 12 years and under supporting Children’s Hospice South West at Trethennal Manor Farm, Portloe, TR2 5PW by kind permission of the Elliott family. Signposted from the A3078 St Mawes Road. For all enquiries please call either 01872 501477 or 501346. For a schedule please send SAE to The Show Secretary, Trethennal Manor Farm, Portloe. TR2 5PW or find us on Facebook for updates and to download a schedule. All entries taken on the day of the Show
Bank Holiday Sunday 25th August from 10 p.m. 'til very late
BODMIN - Eclipse Charity Head Shave & Chest Wax in aid of Children's Hospice South West and Macmillan Cancer Support. Admission £3 before 12 Midnight, £5 after Midnight. Come and support the team - grown men will cry!!!
Sunday 25th August – From 2 p.m.
REDRUTH - Rumons Fun Day & Cider Fest & Grand Charity Balloon Release in aid of Children's Hospice South West at Rumons Club, Penryn Street Redruth. TR15 2SP. Rodeo Sheep ~ Climb Ladder (Win £10) ~ Surf Simulator ~ Bouncy Castle ~ Screech Owl Sanctuary ~ Face Painting ~ Sweets ~ Ice Cream ~ Hot Food. 3 p.m.: Yellowhouse [Classic Rock Anthems]. 5 p.m.: Charity Balloon Release - Buy a Balloon for £2 with a chance to win a £100 First Prize [Balloon tags on sale now - Ask bar staff at Rumons or call Paul Broad 07756 958 356] 5.30 p.m.: Mal's Karaoke. For more info call 01209 215743
Sunday 25th August 7 p.m.
FALMOUTH - 'Up the Creek 2013' supporting Children's Hospice South West. A Boat Trip to those parts of the Fal Estuary other trips do not reach, on the re-furbished Enterprise II. Depart from the Ponsharden Park & Float (Easy access and free parking). £12.50 per person (includes a pasty). Book early to avoid disappointment by calling Anne & Alan Cox 01326 316716 or email firstname.lastname@example.org. *Refunds only in the event of cancellation by Enterprise Boats.
Sunday 25th August 2013 2.30pm Afternoon Tea at The Royal, Tor Royal, Princetown £6.50 per person Enjoy a warm welcome on Dartmoor For more information Call Linda on 01822 852142 or Sheila on 01822 859215
Sunday 1st September 11.30 a.m.Kick off BODMIN - Charity Football Match at Coldharbour Football Ground, Castle Canyke Road, Bodmin. PL31 1DX. FREE ADMISSION, Donations welcome supporting Children's Hospice South West. Followed at 3 p.m. by Live Band at The White Hart Inn, Pool Street, Bodmin. PL31 2HA
NOW OPEN in Truro! A new kind of charity shop selling second hand and new goods for under 5 year olds
Shop - We sell high quality toys, clothes and equipment for young children
Meet - Our shop has been designed to have the space to meet other young families. You may make a friend whilst browsing our aisles!
Join us! Volunteer opportunities available - can you spare just a few hours a week to support your local children's hospice, Little Harbour?
We are looking for volunteers for a few hours a day. There are a range of opportunities from helping with deliveries and collections, merchandising and processing stock to assisting our customers please download a volunteer application form.
Find us (Google map) in Tinner's Court, Truro - next to the Pannier Market between Lemon Quay and Prince's Street. Tel: 01872 858072.
On Monday 5th September 2011 we revealed that the Precious Lives Appeal target of £5 million had been reached!
'Little Harbour, the dream' is now a reality as Cornwall gets it's first Childrens Hospice.
The first families moved into the facility in December 2011
Thank-you SO SO much...you really have helped achieve something incredible.
Although the appeal to build the hospice has reached its goal - Children's Hospice South West still need to find well over £1 million every year to keep Little Harbour running, so your help is as important now as ever.
Just click on the other tabs on this page to find our 'Raise The Roof' Justgiving page, support one of the many local fundraising event or find out about the new dedicated charity shop in Truro and the new improved shop in St Austell.
Photos from Little Harbour on Monday 5th September:
Please scroll down to see our guided video tours with Precious Lives Appeal Manager Emma Lloyd.
Click above for full details of how you can get involved.
Matt embarks on inspiring Para-decathlon to help life-limited children
“One disabled bloke, ten sporting events by wheelchair, crutches, rowing machine or water, to raise funds for Children’s Hospice South West” reads Matt Brewster’s Facebook page.
Just over a month into 2013 and Matt is already two events down in his enormous challenge, having successfully completed the10k January Jaunt run on crutches in Plympton and 2000m as an Adaptive Rower in the Cornish Indoor Rowing Championships in Newquay. He is now part way through a static hand-cycle virtual tour of Britain from Land’s End to John O’Groats, and his next March Madness event will see him rowing between 5 and 10k a day indoors for the whole month.
Matt, from Plymstock, was diagnosed with a rare degenerative bone disease called Avascular Necrosis in March 2008 which affects the mobility in his legs. He also has arthritis and a liver condition, but wanted to keep as active as possible and put his disability to positive use. He explains:
“Having always been an active person and keeping up with my children, it came as a bit of a shock to start with and, after teaching myself about a condition not many people had heard of, wanted to look at my options to stay sporty.
“It was back in 2010 I decided to try the Plymouth Half Marathon on crutches for charity. It took a fair while to get round but I got there in the end. Having done the first event, it seemed a good idea to try and build upon that and the training seemed a good way for me to try and stay healthy in mind and upper-body too. In 2011 I set myself a challenge to complete eight road races in a wheelchair from 10k to half marathon distance, and ended up doing fourteen! I did a mixture of things last year but was hampered by injury. This year I was inspired by the Paralympics to come up with a Para-decathlon challenge in aid of Children’s Hospice South West so I could help local children with a variety of life-limiting conditions.”
Matt’s March Madness will be followed by the completion of the virtual hand-cycle tour and the Plymouth half marathon in April. Other events scheduled in his calendar include a 550m swimming challenge in July, a wheelchair basketball World Record attempt for the most number of free-shots in an hour, and an indoor rowing distance challenge in September, the Plymouth 10k road race in November, and another event still in the pipeline.
By taking on this inspiring challenge, Matt hopes to raise awareness and vital funds for the work of Children’s Hospice South West (CHSW).
Judy Pride, local Community Fundraiser for CHSW’s Little Harbour children’s hospice, says:
“By taking on this host of challenges, and pushing himself to the limit in the face of adversity Matt truly is an inspiration.
“The families from across the South West who use our services face their own daily challenges and the most unimaginable reality – that their precious child is not expected to reach adulthood. We do everything we can to assist them on this difficult journey and to help them make the most of every moment they have together. It is only because of the wonderful support of local people like Matt that we are able to do this, so a huge thank you on behalf of all these children and families.”