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Desperate plea to help Cornish baby born with heart defect

Desperate plea to help Cornish baby born with heart defect

Published by Emma Carton at 7:41am 3rd December 2018. (Updated at 3:52pm 3rd December 2018)

The family of a Cornish baby who suffered a stroke during surgery is making a desperate plea for help.

Little Jacob Ingleby from Falmouth was born by emergency c-section with a heart defect.

Now the tot is severely disabled and often poorly because his immune system is so low.

A Crowdfunder is hoping to help pay for more trips to hospital in Bristol and future physio.

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Little Jacob Ingleby from Falmouth, Cornwall, was born with a heart defect that meant he needed emergency surgery

Mum Kelly has told Pirate FM what it was like when Jacob was whisked away for emergency care.

"Frightening - I can't even begin to tell you. Jacob was taken away from me straight away because he had become very poorly and I didn't get to see Jacob for quite a few hours afterwards.

"The staff were lovely and ended up bringing me a photograph of Jacob because I couldn't go to see him.

"I had two other little girls as well - he's got a six-year-old sister and a two-year-old sister.

"Everything felt very confused and lonely and worried".

Kelly Ingleby

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During Jacob Ingleby's surgery, the tot from Falmouth, Cornwall, suffered a severe stroke that has left him disabled

Jacob's dad knows the road to recovery will be a long and expensive one and has launched a Crowdfunder.

So far, the appeal to help cover the family's costs has raised over two thousand pounds.

Posting on the Just Giving page, Jake Ingleby said he is a proud person and it has taken a lot to ask for help.

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Jacob, from Falmouth, Cornwall, has very limited use of his right arm, has to be fed by a tube into his stomach and has epilepsy

"This is my son Jacob. He was born 16th August 2017. When my wife was pregnant the doctors said that he has a enlarged artery but not to worry. When he was was born he actually has something much worse.

"After he was born he was showing signs of distress and needed help breathing. Later investigation show he had something called TAPVD. The next day he was rushed to Bristol Children’s Hospital for emergency open heart surgery.

"I followed the ambulance to Bristol while my wife had to stay in Treliske due to her having an emergency c-section. She was transferred to St Michael's where she remained for a few days.

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Jacob, from Falmouth, Cornwall, will need more trips to Bristol and physio so his family has launched a Crowdfunder appeal

"Jacob's surgery was successful but unfortunately post surgery, he had a total left-sided infarction, a stroke that has damaged 50% of his brain and also sustained damage to his brain stem which controls automatic functions such as his swallow and breathing.

"As a result of the stroke it has left him very disabled and he also has epilepsy. He hasn't got much use of his right arm and has a severe cerebral visual impairment due the the neurological damage.

"He relies on being fed through his gastrostomy and suffers constant illnesses due to having a very low immune system.

"Saying all that, he does show signs of progress but we need help in trying to better his quality of life and need certain things that are very expensive and constant trips to see specialist in Bristol also takes its toll.

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Jacob's parents, Kelly and Jake, say the road to recovery is long and having to take time off work to travel is expensive

"He will need more surgery within the next few months which means more time off work and that also takes it toll.

"My wife has to make several trips a week to the hospital every week for meeting with consultant and other health professionals.

"We are wanting to raise this money for aids in development and a soft play mats so he's safe when on the floor doing physio and also fund expensive trips to Bristol.

"I'm a very proud person and it's taken me a long to to ask for help but I'm at the point where my family needs it".

Jake Ingleby

You can read more and find out how to donate here.

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