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Cornish mum's plea to give disabled son safe place to play

Cornish mum's plea to give disabled son safe place to play

Published by the Pirate FM News Team at 7:32am 15th December 2018.

Six-year-old Max from Padstow has a genetic condition which means he is in and out of hospital and his family is appealing for help.

Williams syndrome is a developmental disorder that affects many parts of the body.

Max lives with heart, sight, hearing, hip and feeding problems and has learning disabilities, sensory processing disorder and autistic traits.

Mum Sonia Rees had been holding out hope she would hear him speak and this year, he said 'mummy' for the first time. 

max rees
Six-year-old Max from Padstow, Cornwall, is in and out of hospital; he lives with heart, sight, hearing, hip and feeding problems

Sonia describes Max as a 'bundle of sunshine' and has launched a Crowdfunder so she can create a safe haven space for him at home. 

She says that Max can't play with normal toys and often misses out on playing with friends because of how he can struggle with different or busy places.

Max's family are hoping to install sensory lighting, toys and soft play to help him at home.

max rees
Max's family want to provide him with a sensory safe haven at home because being outside is often overwhelming

Max's mum Sonia tells his story:

"He deserves a safe space to relax, play, and call his own as much as any other child does, particularly with all he faces medically.""he deserves a safe space to relax, play, and call his own as much as any other child does, particularly with all he faces medically.

"He's a friendly social, bundle of happiness but the world can seem scary to him. General daily activities can really stress him out. He relies on us to care for him, keep him safe, spoon feed him.

"I just think he deserves a safe space to relax, play, and have as his own as much as any other child does.

"Currently his abilities and needs are around those of a one year old. He has a wheelchair as due to major sensory issues he finds walking out in public overwhelming, given his unlevel vision with all the noises, smells, it can be too much sometimes.

"He will say hello to everyone, and loves hugs as that used to be his way of saying hello.

max rees
Max's mum, Sonia Rees, has launched a Crowdfunder appeal to help pay for the equipment that would help her son

"He can't access a park like other children and use the play equipment as he struggles with mobility, he's only been walking for two years and can't see things clearly or properly.

"He has problems with his vestibular sense which simulates the feelings of vertigo and he finds motion very stressful.

"All the noises from everything around him can overwhelm him, upset him and reduce him to tears.

"Anxiety is a huge issue for people with Williams syndrome. He can hear everyone around him like they are right next to him so struggles to focus on just one thing.

"He has no danger awareness or how to keep himself safe, and can't be left alone. He will also just run if upset by something but have no concept of dangers. He requires constant supervision when he's awake".

Max's mum, Sonia Rees

You can donate to the crowdfunding appeal here.

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