Pirate FM News

Cornish Schoolboy's Brave Tumour Battle

jack mylam

Published by the Pirate FM News Team at 6:01am 9th July 2012. (Updated at 9:38am 9th July 2012)

A Cornish mum has told of the moment she held her little boy in her arms as he lost his fight with cancer.

Eight year old Jack Mylam from Truro battled a rare brain tumour with no cure. Now his mum, Samantha, wants to raise awareness of the condition and try to secure the money needed to help find a cure.

She told Pirate FM, "We were told on the day they diagnosed him that he was going to die. Every day you would think to yourself, 'Is it going to be today?' which was just terrible to cope with."

 

Jack and mum Sam

 

Samantha first took Jack to the doctors in 2008 when he started losing weight and was sick at school. On their second trip to the GP, they were referred to Treliske and thought that it would be a routine check-up. The doctors did an MRI scan and diagnosed Jack with a brain stem tumour, telling his parents that he would die.

The little boy spent eight weeks in Bristol Children's Hospital having radiotherapy, as well as chemo and steroids.

From 2009 onwards he lost his balance, couldn't walk, couldn't eat properly, couldn't speak and couldn't do activities with his friends. Samantha said, "He lost his speech so I came to the realisation I wouldn't be able to hear Jack call me Mummy again. He knew he was different from his friends. He couldn't do the sports that he loved. But that didn't stop him. He was always smiling, giving the thumbs up and a wink."

He died in Samantha's arms.

Now she has started the Jack Mylam Foundation. She said, "Jack fought his battle for eleven months and he died in my arms. It will be three years in August but it feels like it only happened yesterday. I will never get over it. I was devastated. Jack was my whole world. My whole world came crashing down at that moment."

You can hear Samantha's full story here...

 
The charity aims to raise awareness of Diffuse Pontine Glioma and work towards finding a cure for the forty families a year that will be told one of their children has it.

Among the events being held is a Mad Hatters Charity Night at the Penventon Hotel in Redruth on Friday 3rd August at 7pm. Tickets are £10 and invlude live music, auction, free prize draw, pasty supper and a prize for the best hat (optional). You can get more information and buy tickets here.

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